It started with a headache,
But it didn’t go away.
Soon I would find out
That it was here to stay.

They all say, ‘the sun’s out,
go out and get some air!’
But my wobbly legs ache,
not to mention every strand of my hair.

Every Doctor says, ‘You look just fine!
It must be stress. Just get some rest.
Here’s more meds to try to help,
And we’ll run a bunch of tests.’

As time went on and
the headaches got worse,
No meds would work
This felt like a curse.

I couldn’t work.
I couldn’t clean.
I couldn’t cook.
Still not knowing what this means.

I wouldn’t give up
Until I knew what was wrong.
It’s a Chiari Malformation,
So you must stay strong.

So, I have a malformation
In the back of my head.
There isn’t a cure
So I plead and I plead.

Please take this away
And I promise I’ll be the best.
I want to live my life
Please just run some more tests.

“Brain surgery may help you
But it’s not a guarantee.
We will remove part of your skull
And you should be headache free.”

As I walked into surgery
I felt a sense of peace.
I just knew I would be better
And it put my mind at ease.

Two surgeries later
And my symptoms are still here.
There’s no more options or treatments
And my pain won’t disappear.

My new life is different
And not what I had planned.
I still don’t know my purpose
And I don’t know where I stand.

One day at a time.
That’s all I can endure.
So I’ll keep raising awareness
Until Chiari Malformation has a cure.


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Bridges are built as a means to assist people in getting over the things that obstruct their path. We are constantly facing obstacles when it comes to our health, so we decided to build a bridge! Chiari Bridges is a non-profit network built by Chiarians for Chiarians. Our goal is to provide information, substantiated by published studies, in a way that is easy to understand. We encourage readers, to not only read our articles, but look up every study for themselves and read that too. Print it out and sit down with a highlighter; read it as many times as necessary until you understand; then use it to talk to your doctors. Our doctors are under no obligation to read our articles, but they should be willing to read officially published studies from journals, especially those specific to their profession. As many of our authors are patients as well, all authors sharing original pieces will be writing under pseudo-ghost names, to protect them from being black-listed by their doctors. Chiari Bridges is not affiliated with any physician or medical group. You should in no way use this site as a replacement for diagnosis, treatment, or medical from a qualified medical professional. The information provided on our website is strictly for educational purposes, in order to help further the understanding of Chiari, and its associated conditions. Our goal is to share our collective experiences and the information we have gathered, with those in need of answers, that it may increase your knowledge and guide you in conversations with your doctors.