“There are risks and costs to action. But they are far less than the long range risks of comfortable inaction.”
– John F. Kennedy

ACTION IS NECESSARY FOR CHANGE...

As Chiarians we have learned the necessity of educating ourselves and helping one another. Our ability to do so has already revolutionized our fight at an individual level, but we need to be proactive in order to accomplish real change on a larger scale. From our right to competent medical care, to our rights for proper pain management options, we cannot expect people to fight for our rights unless we are first willing to fight ourselves. Please stay tuned to this area with calls to action and updates. All of us need to come together so we CAN make a real difference! Individually we have small voices that are easy to dismiss, but together we are strong, loud and fierce!

Pain Control Rights (PCR)

We have a right to proper help with our pain! Some of us have lost rights in certain states, and others are being threatened for the future loss of pain control options. Our rights as Chronic Pain Patients need to be a focus for all of us. Let’s help our legislators understand what we face and make our voices heard!

Help Needed

There are several things that we'd like to pursue legislatively, but we need more volunteers to do it.
• Medical Cannabis
• Censorship
• Free Access

If you're interested in any of these topics (or others) and would like to help make a difference, email the Chiari Action Network!
We have a right to proper help with our pain! Some of us have lost rights in certain states and others are being threatened for the future loss of pain control options. Our rights as Chronic Pain Patients need to be a focus for all of us. Let’s help our legislators understand what we face and make our voices heard!
COMING SOON! Recent studies have indicated the intricate role between neuropathic pain and the endocannabinoid system. With our doctors' hands being tied in helping us with pain control, some EDS/Chiari/Comorbid patients are finding relief with medical cannabis (CBD/THC). Let's work together to help every patient have as many options as possible, because our legislators don't understand our pain, we need to help them understand.
COMING SOON! Our ability to freely share and discuss medical findings is at risk, and that can be so detrimental to patients with complex diagnoses like ours. Let’s work together to stop the censorship by “independent fact-checkers” that KNOW NOTHING about Connective Tissue Disorders.
COMING SOON! Many don't know this, but nearly every study that Chiari Bridges uses in researching topics that can help us as patients now come with a price tag. When the research behind the study is privately funded, that's understandable, but when it's being paid for with tax dollars, we shouldn't have to pay to see what our dollars paid to find out! Let's work together to try and change this!