Meet Our Teams
Our team is comprised of patients and their family members; each seeking to share what they have learned to help the next person.
Michelle C.
Michelle is a patient and the founder of both Chiari Bridges and Worth The Fight (WTF!). She serves as the CEO and Director of Operations with Chiari Bridges and helps lead the Worth The Fight (WTF!) Admin Team!.
Connie W.
Connie is a patient, cofounder of Chiari Bridges, and founding admin with Worth The Fight (WTF!). She serves as the acting chairwoman with Chiari Bridges and helps lead the Worth The Fight (WTF!) Admin Team!.
Elyse S.
Elyse is a patient, who serves as the Secretary to the Board with Chiari Bridges and serves on the Worth The Fight (WTF!) Admin Team!
Tracy L.
Tracy is not a patient. She serves as the CFO/Treasurer for Chiari Bridges!
Mary C.
Mary is a patient and serves as Director of the Chiari Action Network (CAN) department of Chiari Bridges, where we organize to try and effect legislation pertinent to patients and their families.
Majbrit J.
Majbrit is a patient and serves on the Chiari Bridges board of directors as International Awareness Director - Scandinavia.
Guy & Rachel P.
Guy and Rachel serve on the Chiari Bridges board of directors as International Awareness Director - United Kingdom. Rachel is also a patient.
Stephanie F.
Stephanie is the parent of two children with EDS, Chiari and Comorbidities. She serves as a Parent-Advocacy Coach with Chiari Bridges.
Diana F.
Diana is a patient, serves as Media Director with Chiari Bridges, and serves on the Worth The Fight (WTF!) Admin Team!
Amanda M.
Amanda is a patient and serves on the Worth The Fight (WTF!) Admin Team!