Sleep Apnea - Chiari Bridges

Published: 26 March 2016

Written by CBAdmin

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A serious (even life threatening) condition that involves a temporary suspension of breathing while sleeping. All types of sleep apnea are dangerous and should be taken very seriously. There are three types common to Chiari and/or it’s comorbid conditions:

Central Sleep Apnea (CSA) – When one stops breathing because the brain stops telling it to try (respiratory effort); common amongst Chiarians that have had a measure of damage to their brainstem and/or Vagus Nerve (damaging their Autonomic Nervous System).
Obstructive Sleep Apnea (OSA) – When one stops breathing because of an obstruction (with respiratory effort unchanged); common amongst those with Ehler’s-danlos Syndrome because of their strong tendency for prolapse.
Complex Sleep Apnea – A combination of both CSA and OSA (periods with and without respiratory effort).

Treatments: Bilevel Positive Airway Pressure device (BiPAP or BPAP) or a Continuous Positive Airway Pressure device (CPAP), Losing and maintaining weight can aid in correcting Obstructive Sleep Apnea.

Synonyms:

Central Sleep Apnea, Obstructive Sleep Apnea, Complex Sleep Apnea

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Bridges are built as a means to assist people in getting over the things that obstruct their path. As Chiari patients (Chiarians), we are constantly facing obstacles, not just from the toll our conditions cause in our bodies, but the medical gaslighting that we face adds insult to injury. So, we decided to build a bridge! Chiari Bridges is a non-profit network built by Chiarians for Chiarians. We seek to empower patients (and their families) to better advocate for themselves. We do not sponsor research; instead we read the research that most of our doctors don't! And with it, we aim to provide information that is substantiated by published studies, in a way that is easy to understand and encourage readers to not only read our articles but look up every study for themselves and read that too. Print it out and sit down with a highlighter; read it as many times as necessary until you understand it; then use it to talk to your doctors. Our doctors are under no obligation to read our articles, but they should be willing to read officially published studies from journals, especially those specific to their profession. If we as patients want the care that we deserve, we first need to make ourselves knowledgeable on our conditions so that we recognize the medical professionals that simply don’t know enough to treat us. Chiari Bridges is not affiliated with any physician or medical group. You should in no way use this site as a replacement for diagnosis, treatment, or medical advice from a qualified medical professional. Instead, this is intended to help patients better understand the confusion surrounding Chiari and its comorbid conditions and why 40-50% of Chiari Decompressions fail, so patients are empowered to advocate for the care they deserve. Note: Some of our authors have written under pseudo-ghost names in fear of retaliation from their doctors. The information provided on our website is strictly for educational purposes in order to help further the understanding of Chiari, and its associated conditions. Our goal is to share our collective experiences and the information we have gathered, with those still suffering and in need of answers.

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