“Silently, one by one, in the infinite meadows of heaven, blossomed the lovely stars, the forget-me-nots of the angels.”
– Henry Wadsworth Longfellow

While our angels will never be forgotten by the family and friends that love them, their fight should be remembered.

The vague answers, misdiagnoses, and excused symptoms continue to this day amongst patients still fighting the fight. We would be honored to help get your Angel's Story into circulation in hopes that it would help change the course of this fight for future generation (maybe even in your own family or others).
7/2/93 - 8/11/13
(20 years old)
11/28/98 - 3/11/99
(3.5 months)


“Even in times of trauma, we try to maintain a sense of normality until we no longer can. That, my friends, is called surviving. Not healing. We never become whole again... we are survivors. If you are here today... you are a survivor. But those of us who have made it thru hell and are still standing? We bare a different name: warriors.” – Lori Goodwin

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The Christopher Ellington Story

After being told that his 20mm tonsillar herniation "wasn’t enough to worry about," Chris underwent not one, not two, but three Chiari Decompression surgeries; but due to an undiagnosed connective tissue disorder (EDS) and a hard to find CSF leak, he still nearly lost his battle!
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The Michelle Cole Story

After complaining for 10 years that her neck was too weak to hold up her head, they finally looked on the MRI precisely where Michelle had told them that it hurt. Diagnosed Chiari 1, she suffered a failed decompression, and that's when the real fight began!