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  • Orthostatic Headaches – Pressure headaches that are worse when upright (or after being upright for a period of time), and relieved from laying down. Headaches typically start within 15 minutes of sitting or standing up, and get a measure of relief after lying down for 30 minutes. However, when it comes to cerebrospinal fluid leaks (the most common cause of Intracranial Hypotension), the orthostatic component varies significantly on how long the leak has been present. When a leak first begins, the loss of intracranial pressure has not yet been fully established, and headaches tend to be non-positional. As the leak continues and the intracranial pressure continues to drop, the positional element usually becomes more noticeable. Leaks that have been leaking for a long period of time, tend to have a delayed orthostatic headaches (so the orthostatic feature is easy to miss) or the positional aspect may seem to disappear – headaches take hours to worsen or improve with change of position. They will often wake up in the morning with no headache and get one later in the day when they have spent hours being upright. Likewise, it takes longer to get relief from being supine.


  • Neck pain/stiffness
  • Interscapular (between the shoulder blades)


  • Balance impairment
  • Unsteady gait
  • Incoordination
  • Clumsiness
  • Dizziness
  • Vertigo


  • Memory impairment
  • Brain fog


  • Sensitivity to light
  • Double vision
  • Nystagmus


  • Tinnitis (ringing in the ears)
  • Changes in hearing (muffled sound)
  • Sensitivity to sound(s)

SENSORY PROBLEMS (touch, taste, smell):

  • Metallic taste (leaks from nose)


  • Movement disorders, such as chorea or Parkinsonism
  • Tremors
  • Slow movement
  • Stiffness of extremities
symptoms of low intracranial pressure, symptoms of low ICP
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Bridges are built as a means to assist people in getting over the things that obstruct their path. We are constantly facing obstacles when it comes to our health, so we decided to build a bridge! Chiari Bridges is a non-profit network built by Chiarians for Chiarians. Our goal is to provide information, substantiated by published studies, in a way that is easy to understand. We encourage readers, to not only read our articles, but look up every study for themselves and read that too. Print it out and sit down with a highlighter; read it as many times as necessary until you understand; then use it to talk to your doctors. Our doctors are under no obligation to read our articles, but they should be willing to read officially published studies from journals, especially those specific to their profession. As many of our authors are patients as well, all authors sharing original pieces will be writing under pseudo-ghost names, to protect them from being black-listed by their doctors. Chiari Bridges is not affiliated with any physician or medical group. You should in no way use this site as a replacement for diagnosis, treatment, or medical from a qualified medical professional. The information provided on our website is strictly for educational purposes, in order to help further the understanding of Chiari, and its associated conditions. Our goal is to share our collective experiences and the information we have gathered, with those in need of answers, that it may increase your knowledge and guide you in conversations with your doctors.