Hereditary
Passed down by one generation to the next through genetics.
- When A Chiari Woman Passes AwayWhen a Chiari woman passes away it changes so much for so many.
It leaves a hole in the hearts of the Chiari community because, even as dysfunctional as we are sometimes, we know we’re all in this together!
- We know what it’s like to have conditions that so few understand, including our doctors.
- We know how humiliating it is to watch our bodies change and our muscles deteriorate as we fight just to hold up our heads, even for just a few hours a day.
- We know what it’s like to have our symptoms and pain consistently dismissed as psychosomatic.
- We know what it’s like for doctors to say how easy the surgery will be only to find out that they had no clue of what they were talking about.
- We know the heartbreak we feel when those we love the most choose to believe our doctors instead of us.