Worth The Fight (WTF!) Online Support Group Meeting - Chiari Bridges

Published: 28 June 2022

Written by Michelle C.

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Worth The Fight (WTF!) Online Support Group Meeting

When

06/28/2022

4:30 pm - 6:30 pm

Event Type

Online Support Group

Join us for our next online support group meeting!

Ever feel alone in all you’re facing? It’s one thing to read what people are going through, but to see them as they share how they’re going through the same struggles that you are can be game-changing! Join us in this valuable resource for patients and their families, looking for support and a sense of direction!

This meeting is open to all members of the Worth The Fight (WTF!) Online Community and their family/friends, so feel free to invite those important to you! If you’d like more information on joining our community, click here!

TIME: 4:30-6:30pm (Pacific), 5:30-7:30pm (Mountain), 6:30-8:30pm (Central), 7:30-9:30pm (Eastern)

We understand that might be dinner time for some, so feel free to bring your food and eat while we talk.

If you have to leave early, we understand, but please try to leave quietly.

HOSTED BY: Chiari Bridges, Inc./Worth The Fight (WTF!) Online Community: Support Group Team (supportgroup@chiaribridges.org)

WE MEET ON THE 2nd AND 4th TUESDAY EVENING OF EACH MONTH!

Request Reminders!
*We will send a reminder out the weekend before each meeting and the day of each meeting, the last of which will contain all of the information needed to join the meeting later that evening.

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Bridges are built as a means to assist people in getting over the things that obstruct their path. As Chiari patients (Chiarians), we are constantly facing obstacles, not just from the toll our conditions cause in our bodies, but the medical gaslighting that we face adds insult to injury. So, we decided to build a bridge! Chiari Bridges is a non-profit network built by Chiarians for Chiarians. We seek to empower patients (and their families) to better advocate for themselves. We do not sponsor research; instead we read the research that most of our doctors don't! And with it, we aim to provide information that is substantiated by published studies, in a way that is easy to understand and encourage readers to not only read our articles but look up every study for themselves and read that too. Print it out and sit down with a highlighter; read it as many times as necessary until you understand it; then use it to talk to your doctors. Our doctors are under no obligation to read our articles, but they should be willing to read officially published studies from journals, especially those specific to their profession. If we as patients want the care that we deserve, we first need to make ourselves knowledgeable on our conditions so that we recognize the medical professionals that simply don’t know enough to treat us. Chiari Bridges is not affiliated with any physician or medical group. You should in no way use this site as a replacement for diagnosis, treatment, or medical advice from a qualified medical professional. Instead, this is intended to help patients better understand the confusion surrounding Chiari and its comorbid conditions and why 40-50% of Chiari Decompressions fail, so patients are empowered to advocate for the care they deserve. Note: Some of our authors have written under pseudo-ghost names in fear of retaliation from their doctors. The information provided on our website is strictly for educational purposes in order to help further the understanding of Chiari, and its associated conditions. Our goal is to share our collective experiences and the information we have gathered, with those still suffering and in need of answers.

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