Weekly Worth The Fight (WTF!) Online Social - Intracranial Hypertension/Hypotension - Chiari Bridges

Published: 28 April 2021

Written by Michelle C.

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Weekly Worth The Fight (WTF!) Online Social - Intracranial Hypertension/Hypotension

When

04/28/2021

4:30 pm - 6:30 pm

Ever feel alone in all you’re facing? You’re not as alone as you think!

Join us for our weekly online socials!

Each Wednesday evening, the tribe gets together to share what we’re dealing with. We try to rotate each week between specific topics and open discussion nights.

THIS WEEKS TOPIC: Intracranial Hypertension, Intracranial Hypotension, and Their Connections (to each other, EDS, and Acquired Chiari Malformations)

DATE: Wednesday, 4/28/21

TIME: 4:30pm (Pacific), 7:30pm (Eastern)
I know that’s during dinner time for a lot of us, so bring your food and eat while we talk.

HOSTED BY: The WTF! Admin/Moderator Team

We hope that we can help with some of the questions that you might be struggling with, or at least provide you with some support so that you know that you’re not crazy and not alone!

This meeting is open exclusively to our Worth The Fight (WTF!) Tribe members. To register, see our event in our Worth The Fight (WTF!) Facebook group.
This meeting will be conducted in our WTF! Zoom! If you haven’t yet registered for Zoom, please do so before the meeting day. We will provide the link to the Zoom Meeting 30-45 minutes prior to the meeting. So PLEASE BE SURE THAT EVENT NOTIFICATIONS ARE ON!
This may be an extensive meeting, so you might want to plan accordingly. If you have to leave early, we understand, but please try to leave quietly.
Please write down your questions and let’s see what we can figure out together! There will be a post for questions pinned to in this event where you can propose your questions ahead of time.

#WTFtribeSOCIAL

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Bridges are built as a means to assist people in getting over the things that obstruct their path. As Chiari patients (Chiarians), we are constantly facing obstacles, not just from the toll our conditions cause in our bodies, but the medical gaslighting that we face adds insult to injury. So, we decided to build a bridge! Chiari Bridges is a non-profit network built by Chiarians for Chiarians. We seek to empower patients (and their families) to better advocate for themselves. We do not sponsor research; instead we read the research that most of our doctors don't! And with it, we aim to provide information that is substantiated by published studies, in a way that is easy to understand and encourage readers to not only read our articles but look up every study for themselves and read that too. Print it out and sit down with a highlighter; read it as many times as necessary until you understand it; then use it to talk to your doctors. Our doctors are under no obligation to read our articles, but they should be willing to read officially published studies from journals, especially those specific to their profession. If we as patients want the care that we deserve, we first need to make ourselves knowledgeable on our conditions so that we recognize the medical professionals that simply don’t know enough to treat us. Chiari Bridges is not affiliated with any physician or medical group. You should in no way use this site as a replacement for diagnosis, treatment, or medical advice from a qualified medical professional. Instead, this is intended to help patients better understand the confusion surrounding Chiari and its comorbid conditions and why 40-50% of Chiari Decompressions fail, so patients are empowered to advocate for the care they deserve. Note: Some of our authors have written under pseudo-ghost names in fear of retaliation from their doctors. The information provided on our website is strictly for educational purposes in order to help further the understanding of Chiari, and its associated conditions. Our goal is to share our collective experiences and the information we have gathered, with those still suffering and in need of answers.

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