Chiari Awareness Rally Online (Week 4) - Chiari Bridges

Published: 25 September 2022

Written by Administration Team

No comments

Chiari Awareness Rally Online (Week 4)

When

09/25/2022

10:30 am - 12:00 pm

Event Type

Online Support Group

TOGETHER, WE WILL MAKE OUR CONDITION(S) KNOWN!!!

With so much out of control, it’s often hard to remember that there are things that we can often do to improve our quality of life. Can diet and certain supplements help with some of my pain? How important is exercise? How do I try to exercise when I hurt so badly? Can stress cause a chain reaction that causes my pain to flare? Can I help reduce my brain fog so that I can think straight? I feel like I’m quickly losing everything and there’s no hope in sight. Can I ever get a handle on all of this?

AGENDA FOR WEEK 4: (full event schedule)

TETHERED CORD SYNDROME VS. OCCULT TETHERED CORD

- Causes
- Treatments
- Post-operative complications:
  - Failed decompression
- Symptoms

RELATED COMORBIDITIES

- Acquired Chiari Malformation

CONNECTING THE DOTS:

- What are connective tissues?
- What are HDCTs?
- What is Ehlers-Danlos Syndrome (EDS)?
- Hypermobile EDS (hEDS)
- Hypermobility: More than you think it is!
- How it has everything to do with everything we face!

PLEASE REGISTER FOR THIS EVENT ON OUR FACEBOOK PAGE: GO TO EVENT

Bridges are built as a means to assist people in getting over the things that obstruct their path. As Chiari patients (Chiarians), we are constantly facing obstacles, not just from the toll our conditions cause in our bodies, but the medical gaslighting that we face adds insult to injury. So, we decided to build a bridge! Chiari Bridges is a non-profit network built by Chiarians for Chiarians. We seek to empower patients (and their families) to better advocate for themselves. We do not sponsor research; instead we read the research that most of our doctors don't! And with it, we aim to provide information that is substantiated by published studies, in a way that is easy to understand and encourage readers to not only read our articles but look up every study for themselves and read that too. Print it out and sit down with a highlighter; read it as many times as necessary until you understand it; then use it to talk to your doctors. Our doctors are under no obligation to read our articles, but they should be willing to read officially published studies from journals, especially those specific to their profession. If we as patients want the care that we deserve, we first need to make ourselves knowledgeable on our conditions so that we recognize the medical professionals that simply don’t know enough to treat us. Chiari Bridges is not affiliated with any physician or medical group. You should in no way use this site as a replacement for diagnosis, treatment, or medical advice from a qualified medical professional. Instead, this is intended to help patients better understand the confusion surrounding Chiari and its comorbid conditions and why 40-50% of Chiari Decompressions fail, so patients are empowered to advocate for the care they deserve. Note: Some of our authors have written under pseudo-ghost names in fear of retaliation from their doctors. The information provided on our website is strictly for educational purposes in order to help further the understanding of Chiari, and its associated conditions. Our goal is to share our collective experiences and the information we have gathered, with those still suffering and in need of answers.

© 2017 - 2023 by Chiari Bridges, Inc.
All rights reserved.