Chiari Awareness Rally Online (Week 4) - Chiari Bridges

Published: 25 September 2022

Written by Administration Team

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Chiari Awareness Rally Online (Week 4)

When

09/25/2022

10:30 am - 12:00 pm

Event Type

TOGETHER, WE WILL MAKE OUR CONDITION(S) KNOWN!!!

With so much out of control, it’s often hard to remember that there are things that we can often do to improve our quality of life. Can diet and certain supplements help with some of my pain? How important is exercise? How do I try to exercise when I hurt so badly? Can stress cause a chain reaction that causes my pain to flare? Can I help reduce my brain fog so that I can think straight? I feel like I’m quickly losing everything and there’s no hope in sight. Can I ever get a handle on all of this?

AGENDA FOR WEEK 4: (full event schedule)

TETHERED CORD SYNDROME VS. OCCULT TETHERED CORD

- Causes
- Treatments
- Post-operative complications:
  - Failed decompression
- Symptoms

RELATED COMORBIDITIES

- Acquired Chiari Malformation

CONNECTING THE DOTS:

- What are connective tissues?
- What are HDCTs?
- What is Ehlers-Danlos Syndrome (EDS)?
- Hypermobile EDS (hEDS)
- Hypermobility: More than you think it is!
- How it has everything to do with everything we face!

PLEASE REGISTER FOR THIS EVENT ON OUR FACEBOOK PAGE: GO TO EVENT

Bridges are built as a means to assist people in getting over the things that obstruct their path. We are constantly facing obstacles when it comes to our health, so we decided to build a bridge! Chiari Bridges is a non-profit network built by Chiarians for Chiarians. Our goal is to provide information, substantiated by published studies, in a way that is easy to understand. We encourage readers, to not only read our articles, but look up every study for themselves and read that too. Print it out and sit down with a highlighter; read it as many times as necessary until you understand; then use it to talk to your doctors. Our doctors are under no obligation to read our articles, but they should be willing to read officially published studies from journals, especially those specific to their profession. As many of our authors are patients as well, all authors sharing original pieces will be writing under pseudo-ghost names, to protect them from being black-listed by their doctors. Chiari Bridges is not affiliated with any physician or medical group. You should in no way use this site as a replacement for diagnosis, treatment, or medical from a qualified medical professional. The information provided on our website is strictly for educational purposes, in order to help further the understanding of Chiari, and its associated conditions. Our goal is to share our collective experiences and the information we have gathered, with those in need of answers, that it may increase your knowledge and guide you in conversations with your doctors.

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All rights reserved.

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