TOGETHER, WE WILL MAKE OUR CONDITION(S) KNOWN!!!

Do you ever feel dismissed by your medical professional(s)? Have you ever spent hours or days writing out your symptoms so that you don’t stumble with your words, only to feel like it’s falling on deaf ears? Is there anything worth salvaging in your relationship with your doctor? At what point should you look for a new doctor? What about your other relationships, do you ever feel like they believe the doctors over you? Do you love someone with Chiari and struggle with letting them know how much they mean to you? Is there a way to heal damaged relationships? What is Palliative Care? Who can qualify? Could it be beneficial to pursue? Are there problems associated with getting referred?

AGENDA FOR WEEK 3: (full event schedule)

HIGH INTRACRANIAL PRESSURE

• • Causes
  • Treatments
  • Post-operative complications:
    • Pseudomeningocele
    • Failed decompression
  • Symptoms
  • Cranial Leaks

LOW INTRACRANIAL PRESSURE

• • Spinal Leaks
  • Causes
  • Treatments
  • Post-operative complications:
    • Failed decompression
  • Symptoms

RELATED COMORBIDITIES

• • Acquired Chiari Malformation

CONNECTING THE DOTS: HOW IT RELATES TO YOUR CONNECTIVE TISSUES

GETTING PROPER DIAGNOSES

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