LET’S MAKE CHIARI KNOWN TOGETHER!!!

There are so many debates and controversial topics surrounding Chiari Malformation, but did you ever ask yourself why? Is Chiari just a congenital defect or can there be other causes for the hind brain prolapse? Can a posterior fossa be measured? If Chiari is nothing but a small posterior fossa, why do they only measure the tonsillar herniation? Is the “3-5 mm rule” completely insignificant? If so, why? Why do doctors assume that our tonsillar prolapse is from a small posterior fossa without even measuring it? Do neurosurgeons look for signs of other pathologies before recommending decompression surgery? Is there a connection between Chiari and all of these other possible causes (pathologies)? If one or more of these pathologies is a factor and it fails to be dealt with prior to decompression, can it cause the decompression to fail? Why do we have so many symptoms that doctors think are unrelated?

AGENDA FOR WEEK 1: (full event schedule)

WHAT IS CHIARI MALFORMATION?

• • Symptoms of Chiari Malformation
  • History of Chiari
  • Debates surrounding the definition
  • Diagnosis criteria – tonsillar ectopia, 3-5mm rule, CINE MRIs, Uprights

COMORBIDITIES OF CHIARI

• • Syringomyelia/Syringobulbia
  • Brain stem Compression
  • Dysautonomia
  • Intro to Intracranial Hypertension

CONNECTING THE DOTS: HOW IT RELATES TO YOUR CONNECTIVE TISSUES

GETTING A PROPER DIAGNOSES

TREATMENT OPTIONS

• • No Treatment
  • Posterior Fossa Decompression
  • Looking for comorbid conditions

PLEASE REGISTER FOR THIS EVENT ON OUR FACEBOOK PAGE:  GO TO EVENT