The travesty lies in that because we are never offered a multidisciplinary approach to our healthcare, we fail to understand that other non-neurological decisions can hurt us neurologically – and gynecologists continue to use progestin based birth control methods on patients with Ehlers-Danlos (where their cerebellar tonsils are already pre-disposed to prolapse, like many of their other organs), effectively raising intracranial pressure, that pushes the cerebellar tonsils down into the foramen magnum.

For more on these pathological cofactors and how they relate to Chiari and EDS (a genetic condition): https://chiaribridges.org/overview-chiari-comorbidities-etiological-pathological-cofactors/

For more information, see:

• https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2887504/
• http://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.31549/full

*Both of these studies are published in the US National Library of Medicine National Institutes of Health, so our Neurosurgeons have no excuse for not knowing about them.